News


New Study: SCD NHDR (data)

Posted on June 23, 2025

A new study, Sickle Cell Disease Natural History Data Resource (SCD NHDR), has been posted to BioLINCC. Data from this study are available for requests.


New Study: QUARTET USA (data)

Posted on May 7, 2025

A new study, A Double Blind Randomized Controlled Trial to Assess the Efficacy and Safety of a Quadruple Ultra-low-dose Treatment for Hypertension (QUARTET USA), has been posted to BioLINCC. Data from this study are available for requests.


Data Update for JHS

Posted on April 11, 2025

Data have been updated for The Jackson Heart Study (JHS). This update includes the addition of baseline nutrition data. The data now include visit 1-3 examination cycles, collated annual follow-up communication data through 2016, follow-up for mortality, heart disease, and stroke events through 2014, and baseline nutrition data.


Data Update for HCT for SCD

Posted on April 3, 2025

Data have been updated for the Hematopoietic Cell Transplant for Sickle Cell Disease (HCT for SCD) study. This update includes an additional year of data.

Data available for request now include allogeneic hematopoietic cell transplants for sickle cell disease (Hb SS and Hb Sβ thalassemia) in the United States from January 1991 to December 2023, as well as follow-up data through June of 2024.


Data Update for PETAL-BLUE CORAL

Posted on February 28, 2025

Data have been updated for the Prevention and Early Treatment of Acute Lung Injury (PETAL) Network – Biology and Longitudinal Epidemiology of PETAL COVID-19 Observational Study (BLUE CORAL) study. This update includes Long Term Outcome data.


New Study: Kids-DOTT (data and specimens)

Posted on February 25, 2025

A new study, Prospective Multi-Center Evaluation of the Duration of Therapy for Thrombosis in Children (Kids-DOTT), has been posted to BioLINCC. Data and specimens from this study are available for requests.


New Study: CleanUP IPF (data)

Posted on February 4, 2025

A new study, Study of Clinical Efficacy of Antimicrobial Therapy Strategy Using Pragmatic Design in Idiopathic Pulmonary Fibrosis (CleanUP IPF), has been posted to BioLINCC. Data from this study are available for requests.


New Study: LEEP (data)

Posted on January 3, 2025

A new study, Losartan Effects on Emphysema Progression (LEEP), has been posted to BioLINCC. Data from this study are available for requests.


PETAL-VIOLET Biospecimens Available

Posted on November 14, 2024

Biospecimens from the Prevention and Early Treatment of Acute Lung Injury (PETAL) Clinical Trials Network – Vitamin D to Improve Outcomes by Leveraging Early Treatment (VIOLET) study are now available for request.


New Study: PETAL-ASTER (data and specimens)

Posted on November 14, 2024

A new study, Prevention and Early Treatment of Acute Lung Injury (PETAL) Acetaminophen in Sepsis: Targeted Therapy to Enhance Recovery (ASTER), has been posted to BioLINCC. Data and specimens from this study are available for requests.


New Study: BEST-CLI (data)

Posted on November 12, 2024

A new study, Best Endovascular vs. Best Surgical Therapy in Patients With Critical Limb Ischemia (BEST-CLI), has been posted to BioLINCC. Data from this study are available for requests.


New Study: ICU-RESUS (data)

Posted on October 21, 2024

A new study, Improving Outcomes After Pediatric Cardiac Arrest (ICU-RESUS), has been posted to BioLINCC. Data from this study are available for requests.


New Study: BMT CTN-1401 (data)

Posted on October 18, 2024

A new study, Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Phase II Multicenter Trial of Single Autologous Hematopoietic Cell Transplant Followed by Lenalidomide Maintenance for Multiple Myeloma With or Without Vaccination With Dendritic Cell/Myeloma Fusions (1401), has been posted to BioLINCC. Data from this study are available for requests.


Data Update for CARDIA

Posted on October 11, 2024

Data have been updated for the CARDIA study (Coronary Artery Risk Development in Young Adults). Available data for request include exam data through Year 30 and outcomes and death data through 2022. Additionally, data from 28 ancillary studies are available for request including 10 new studies in this update.


Data Update for PETAL-CLOVERS

Posted on September 20, 2024

Data have been updated for the Prevention and Early Treatment of Acute Lung Injury (PETAL) Crystalloid Liberal or Vasopressors Early Resuscitation in Sepsis (CLOVERS) study. This update includes Long Term Outcome data.


Data Update for ARIC Study

Posted on August 30, 2024

Data have been updated for the Atherosclerosis Risk in Communities Study (ARIC) study including exam cycle v8, annual follow-up communication data for year 32, and data from the Proteomics ancillary study. Now available are data from v1-v8 examination cycles, collated annual follow-up communication data for contact years 2-32, and follow-up for mortality, heart disease, and stroke events through 2019 in addition to 21 ancillary studies.

Note, ARIC data is no longer available for request by for-profit entities.


New Study: TOP (data)

Posted on August 9, 2024

A new study, Transfusion of Prematures (TOP) Trial: Does a Liberal Red Blood Cell Transfusion Strategy Improve Neurologically-Intact Survival of Extremely-Low-Birth-Weight Infants as Compared to a Restrictive Strategy?, has been posted to BioLINCC. Data from this study are available for requests.


Data Update for MESA

Posted on July 5, 2024

Data have been updated for the Multi-Ethnic Study of Atherosclerosis (MESA). This update includes the addition of the AS039 Air Pollution ancillary study.


New Study: PETAL-FIRE CORAL (data and specimens)

Posted on March 1, 2024

A new study, Prevention and Early Treatment of Acute Lung Injury (PETAL) Network – Functional, imaging, and respiratory evaluation in CORAL (FIRE CORAL), has been posted to BioLINCC. Data and specimens from this study are available for requests.


PETAL-BLUE CORAL Biospecimens Available

Posted on December 5, 2023

Biospecimens from the Prevention and Early Treatment of Acute Lung Injury (PETAL) Network – Biology and Longitudinal Epidemiology of PETAL COVID-19 Observational Study (BLUE CORAL) study are now available for request.