News
New Study: PETAL-VIOLET (data)
Posted on May 16, 2022
A new study, Prevention and Early Treatment of Acute Lung Injury (PETAL) Clinical Trials Network – Vitamin D to Improve Outcomes by Leveraging Early Treatment (VIOLET), has been posted to BioLINCC. Data from this study are available for requests.
PETAL-ROSE Biospecimens Available
Posted on May 6, 2022
Biospecimens from the Prevention and Early Treatment of Acute Lung Injury (PETAL) Network – Reevaluation of Systemic Early Neuromuscular Blockade (ROSE) study are now available for request.
Data Update for HCHS-SOL
Posted on May 6, 2022
Data have been updated for the Hispanic Community Health Study / Study of Latinos (HCHS-SOL). This update includes the addition of the main study visit 2 data.
New Study: SNAP (data)
Posted on March 28, 2022
A new study, Study of Novel Approaches for Prevention (SNAP), has been posted to BioLINCC. Data from this study are available for requests.
New Study: HFN-IRONOUT (data)
Posted on March 11, 2022
A new study, Heart Failure Network (HFN) Oral Iron Repletion Effects on Oxygen Uptake in Heart Failure (IRONOUT), has been posted to BioLINCC. Data from this study are available for requests.
Funding Opportunity: NHLBI PAR-20-078
Posted on March 9, 2022
The goal of this funding opportunity is to stimulate the use of existing human datasets for well-focused secondary analyses to investigate novel scientific ideas or new models, systems, tools, methods, or technologies that have the potential for significant impact on biomedical or biobehavioral research in areas relevant to the NHLBI mission. This FOA actively supports the use of existing database resources to conduct additional analyses secondary to a project's originally-intended primary purpose. Applications may be related to, but must be distinct from, the specific aims of the original data collection. It will not support the collection of new data.
For more information on PAR-20-078 please visit:
https://grants.nih.gov/grants/guide/pa-files/PAR-20-078.html
Funding Opportunity: NHLBI R21 RFA-HL-23-018
Posted on March 7, 2022
This funding opportunity is to support meritorious exploratory research relevant to the NHLBI mission using the biospecimen collections that are stored in the NHLBI Biorepository and that are available through BioLINCC. The first application due date is June 21, 2022.
For more information on RFA-HL-23-018 please visit: https://grants.nih.gov/grants/guide/rfa-files/RFA-HL-23-018.html
as well as the FAQs: https://www.nhlbi.nih.gov/grants-and-training/funding-opportunities-and-contacts/RFA-HL-23-018
Data Update for HCT for SCD
Posted on February 11, 2022
Data have been updated for the Hematopoietic Cell Transplant for Sickle Cell Disease (HCT for SCD) study. This update includes an additional year of data.
Data available for request now include allogeneic hematopoietic cell transplants for sickle cell disease (Hb SS and Hb Sβ thalassemia) in the United States from January 1991 to December 2020, as well as follow-up data through May 2021.
New Study: BMT CTN-0702 (data)
Posted on February 8, 2022
A new study, Blood and Marrow Transplant Clinical Trials Network (BMT CTN) A Trial of Single Autologous Transplant With or Without Consolidation Therapy Versus Tandem Autologous Transplant With Lenalidomide Maintenance for Patients With Multiple Myeloma (0702), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for WHI-CTOS Study
Posted on February 7, 2022
Data have been updated for the Women's Health Initiative: Clinical Trial and Observational Study (WHI-CTOS) including the LILAC substudy and updated outcome data through 3/7/2021.
AsthmaNet Biospecimens Available
Posted on January 21, 2022
DNA and plasma biospecimens from 5 AsthmaNet studies are now available for request.
This includes the AsthmaNet Proof of Concept Study of Alendronate for Asthma (ALFA), AsthmaNet Azithromycin for Preventing the Development of Upper Respiratory Tract Illness Into Lower Respiratory Tract Symptoms in Children (APRIL) and Oral Corticosteroids for Treating Episodes of Significant Lower Respiratory Tract Symptoms in Children (OCELOT), AsthmaNet Individualized Therapy For Asthma in Toddlers (INFANT) and Acetaminophen Versus Ibuprofen in Children With Asthma (AVICA), AsthmaNet Airway Microbiome in Asthma: Relationships to Asthma Phenotype and Inhaled Corticosteroid Treatment, and AsthmaNet Step-up Yellow Zone Inhaled Corticosteroids to Prevent Exacerbations (STICS) studies.
New Study: BMT CTN-0903 (data)
Posted on January 19, 2022
A new study, Blood and Marrow Clinical Trials Network (BMT CTN) Allogeneic Hematopoietic Cell Transplant for Hematological Cancers and Myelodysplastic Syndromes in HIV-Infected Individuals (0903), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for MESA
Posted on January 5, 2022
Data have been updated for the Multi-Ethnic Study of Atherosclerosis (MESA). This update includes the addition of Exam 5 cognitive abilities screening instrument variables and Exam 5 computed risk variables.
BABY HUG Biospecimens Available
Posted on December 6, 2021
DNA biospecimens from the Hydroxyurea to Prevent Organ Damage in Children with Sickle Cell Anemia (BABY HUG) Phase III Clinical Trial and Follow-Up Observational Studies I and II are now available for request.
New Study: BMT CTN-0801 (data)
Posted on December 1, 2021
A new study, Blood and Marrow Transplant Clinical Trials Network (BMT CNT) A Phase II/III Randomized, Multicenter Trial Comparing Sirolimus Plus Prednisone and Sirolimus/Calcineurin Inhibitor Plus Prednisone for the Treatment of Chronic Graft-versus-Host Disease (0801), has been posted to BioLINCC. Data from this study are available for requests.
New Study: PETAL-RED CORAL (data)
Posted on November 29, 2021
A new study, Prevention and Early Treatment of Acute Lung Injury (PETAL) Clinical Trials Network - Repository of Electronic Data COVID-19 Observational Study (RED CORAL), has been posted to BioLINCC. Data from this study are available for requests.
New Study: TMH-RING (data)
Posted on October 7, 2021
A new study, Transfusion Medicine and Hemostasis Clinical Trial Network (TMH CTN) - Resolving Infection in Neutropenia With Granulocytes (RING), has been posted to BioLINCC. Data from this study are available for requests.
New Study: HFN-ATHENA HF (data)
Posted on September 28, 2021
A new study, Heart Failure Network (HFN) Aldosterone Targeted Neurohormonal Combined with Natriuresis Therapy - HF (ATHENA HF), has been posted to BioLINCC. Data from this study are available for requests.
New Study: HFN-FIGHT (data)
Posted on September 20, 2021
A new study, Heart Failure Network (HFN) Functional Impact of GLP-1 for Heart Failure Treatment (FIGHT), has been posted to BioLINCC. Data from this study are available for requests.
New Study: BMT CTN-0601 (data)
Posted on September 17, 2021
A new study, Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Unrelated Donor Reduced Intensity Bone Marrow Transplant for Children With Severe Sickle Cell Disease (0601), has been posted to BioLINCC. Data from this study are available for requests.
New Study: MEDFOCUS (data)
Posted on September 9, 2021
A new study, MEDication Focused Outpatient Care for Underutilization of Secondary Prevention (MEDFOCUS), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for CARDIA
Posted on August 26, 2021
Data have been updated for the CARDIA study (Coronary Artery Risk Development in Young Adults). Data from the Year 30 ABPM substudy are now available.
New Study: TMH CTN-RECESS (data)
Posted on August 4, 2021
A new study, Transfusion Medicine and Hemostasis Clinical Trial Network (TMH CTN) - Red Cell Storage Duration Study (RECESS), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for ARIC Study
Posted on July 22, 2021
Data have been updated for the Atherosclerosis Risk in Communities Study (ARIC) study including cohort follow-up data through 2017. Now available are data from v1-v6 examination cycles, collated annual follow-up communication data for contact years 2-29, and follow-up for mortality, heart disease, and stroke events through 2017 in addition to 7 ancillary studies.
NHLBI Cure Sickle Cell Initiative
Posted on July 14, 2021
The NHLBI Cure Sickle Cell Initiative has established a web-based publicly available Metadata Catalog of curated data elements and study documentation from past and current studies of sickle cell disease populations. The catalog has over 10,000 data variables from 16 studies organized into searchable categories. Tools to help investigators find data elements and determine the availability of common data for cross-study analysis are provided. Visit the catalog at https://curesicklecell.rti.org/.
New Study: BMT CTN-1204 (data)
Posted on June 11, 2021
A new study, Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Reduced Intensity Conditioning for Children and Adults With Hemophagocytic Syndromes or Selected Primary Immune Deficiencies (1204), has been posted to BioLINCC. Data from this study are available for requests.
New Study: REVIVAL (data)
Posted on June 8, 2021
A new study, Registry Evaluation of Vital Information for VADs in Ambulatory Life (REVIVAL), has been posted to BioLINCC. Data from this study are available for requests.
New Study: ROSTERS (data)
Posted on June 8, 2021
A new study, Randomized Order Safety Trial Evaluating Resident-physician Schedules Study (ROSTERS), has been posted to BioLINCC. Data from this study are available for requests.
Biorepository COVID-19 Resources
Posted on March 18, 2021
In collaboration with the NHLBI Biorepository and the Trans-NIH AgingResearchBiobank Steering Committee, NHLBI has developed COVID-19 Biorepository FAQs to serve as a resource/reference for the scientific community. This includes descriptions of enhanced procedures employed by the Biorepository to ensure staff safety and to mitigate the potential of airborne exposure to COVID-19 virus particles, as well as references to CDC shipping guidelines for suspected and confirmed SARS-CoV-2 patient specimens, cultures, or isolates. Click here to access this FAQ document.