News
Data Update for ARIC Study
Posted on July 22, 2021
Data have been updated for the Atherosclerosis Risk in Communities Study (ARIC) study including cohort follow-up data through 2017. Now available are data from v1-v6 examination cycles, collated annual follow-up communication data for contact years 2-29, and follow-up for mortality, heart disease, and stroke events through 2017 in addition to 7 ancillary studies.
NHLBI Cure Sickle Cell Initiative
Posted on July 14, 2021
The NHLBI Cure Sickle Cell Initiative has established a web-based publicly available Metadata Catalog of curated data elements and study documentation from past and current studies of sickle cell disease populations. The catalog has over 10,000 data variables from 16 studies organized into searchable categories. Tools to help investigators find data elements and determine the availability of common data for cross-study analysis are provided. Visit the catalog at https://curesicklecell.rti.org/.
New Study: BMT CTN-1204 (data)
Posted on June 11, 2021
A new study, Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Reduced Intensity Conditioning for Children and Adults With Hemophagocytic Syndromes or Selected Primary Immune Deficiencies (1204), has been posted to BioLINCC. Data from this study are available for requests.
New Study: REVIVAL (data)
Posted on June 8, 2021
A new study, Registry Evaluation of Vital Information for VADs in Ambulatory Life (REVIVAL), has been posted to BioLINCC. Data from this study are available for requests.
New Study: ROSTERS (data)
Posted on June 8, 2021
A new study, Randomized Order Safety Trial Evaluating Resident-physician Schedules Study (ROSTERS), has been posted to BioLINCC. Data from this study are available for requests.
New Study: PETAL-ROSE (data)
Posted on May 10, 2021
A new study, Prevention and Early Treatment of Acute Lung Injury (PETAL) Network – Reevaluation of Systemic Early Neuromuscular Blockade (ROSE), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for FHS-Gen III
Posted on May 3, 2021
Data have been updated for the Framingham Heart Study (FHS) Third Generation (Gen III), OMNI 2, and New Offspring (NOS) Cohorts. The data now include examination data from the first 2 clinical exams, selected ancillary data and event follow-up and dementia review through 2018. Also included are the OMNI 2 and NOS cohorts.
New Study: CARE-PEAK (data)
Posted on April 20, 2021
A new study, Childhood Asthma Research and Education (CARE) Network Trial - Prevention of Early Asthma in Kids (PEAK), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for FHS-Offspring
Posted on April 16, 2021
Data have been updated for the Framingham Heart Study (FHS) Offspring (OS) and OMNI 1 Cohorts. The data now include Framingham Offspring examination data from the first 9 clinical exams and selected ancillary data and event follow-up through 2018. Also included are the first 4 exams from the OMNI 1 cohort.
New Study: HCT for SCD (data)
Posted on April 8, 2021
A new study, Hematopoietic Cell Transplant for Sickle Cell Disease (HCT for SCD), has been posted to BioLINCC. Data from this study are available for requests.
New Study: CDP (data)
Posted on March 19, 2021
A new study, Coronary Drug Project (CDP), has been posted to BioLINCC. Data from this study are available for requests.
Biorepository COVID-19 Resources
Posted on March 18, 2021
In collaboration with the NHLBI Biorepository and the Trans-NIH AgingResearchBiobank Steering Committee, NHLBI has developed COVID-19 Biorepository FAQs to serve as a resource/reference for the scientific community. This includes descriptions of enhanced procedures employed by the Biorepository to ensure staff safety and to mitigate the potential of airborne exposure to COVID-19 virus particles, as well as references to CDC shipping guidelines for suspected and confirmed SARS-CoV-2 patient specimens, cultures, or isolates. Click here to access this FAQ document.
New Study: CARE-MIST (data)
Posted on February 24, 2021
A new study, Childhood Asthma Research and Education (CARE) Network Trial – Maintenance Versus Intermittent Inhaled Steroids in Wheezing Toddlers (MIST), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for FHS-Cohort
Posted on February 16, 2021
Data have been updated for the Framingham Heart Study-Cohort (FHS-Cohort). The data now include event follow-up through 2018.
New Study: PRIDE (data)
Posted on February 4, 2021
A new study, PRograms to Increase Diversity among Individuals Engaged in Health-related Research (PRIDE), has been posted to BioLINCC. Data from this study are available for requests.
New Study: RESTORE (data)
Posted on January 19, 2021
A new study, Randomized Evaluation of Sedation Titration for Respiratory Failure (RESTORE), has been posted to BioLINCC. Data from this study are available for requests.
New Study: PETAL-ORCHID (data)
Posted on December 23, 2020
A new study, Prevention and Early Treatment of Acute Lung Injury (PETAL) Clinical Trials Network - Outcomes Related to COVID-19 treated with Hydroxychloroquine among In-patients with symptomatic Disease (ORCHID), has been posted to BioLINCC. Data from this study are available for requests.
New Study: BABY HUG (data)
Posted on December 18, 2020
A new study, Hydroxyurea to Prevent Organ Damage in Children with Sickle Cell Anemia (BABY HUG) Phase III Clinical Trial and Follow-Up Observational Studies I and II, has been posted to BioLINCC. Data from this study are available for requests.
New Study: CHIVES (data)
Posted on December 16, 2020
A new study, Coupons for Healthy Intake Using Variable Economic Strategies (CHIVES), has been posted to BioLINCC. Data from this study are available for requests.
New Study: LTRC (data and specimens)
Posted on November 30, 2020
A new study, Lung Tissue Research Consortium (LTRC), has been posted to BioLINCC. Data and specimens from this study are available for requests.
Data Update for SPRINT
Posted on November 19, 2020
Data have been updated for the Systolic Blood Pressure Intervention Trial (SPRINT) study. The data now include the Pulse Wave Velocity ancillary study as well as updates to the MRI and MIND data.
New Study: CARE-PACT (data)
Posted on November 13, 2020
A new study, Childhood Asthma Research and Education (CARE) Network Trial - Pediatric Asthma Controller Trial (PACT), has been posted to BioLINCC. Data from this study are available for requests.
New Study: CARE-CLIC (data)
Posted on November 10, 2020
A new study, Childhood Asthma Research and Education (CARE) Network Characterizing the Response to a Leukotriene Receptor Antagonist and an Inhaled Corticosteroid (CLIC), has been posted to BioLINCC. Data from this study are available for requests.
New Study: COPTR (data)
Posted on October 27, 2020
A new study, Childhood Obesity Prevention and Treatment Research consortium (COPTR) Now Everybody Together for Amazing and Healthful Kids (NET-Works); Growing Right Onto Wellness (GROW); Ideas Moving Parents and Adolescents to Change Together (IMPACT); Clinic, Family & Community Collaboration to Treat Overweight and Obese Children (Stanford GOALS), has been posted to BioLINCC. Data from this study are available for requests.
New Non-BioLINCC Resource: INHALD Study (specimens and data)
Posted on August 28, 2020
The Investigating HIV-Associated Lung Disease (INHALD) study has been posted to website as a non-BioLINCC resource for biospecimens and study datasets.
For more information:
https://biolincc.nhlbi.nih.gov/studies/inhald-non/
https://biolincc.nhlbi.nih.gov/nonbiolincc_resources/
New Study: CARE-MARS (data)
Posted on August 24, 2020
A new study, Childhood Asthma Research and Education (CARE) Network Trial - Montelukast or Azithromycin for Reduction of Inhaled Corticosteroids in Childhood Asthma (MARS), has been posted to BioLINCC. Data from this study are available for requests.
Data Update for GUIDE-IT
Posted on August 13, 2020
Data have been updated for the Guiding Evidence Based Therapy Using Biomarker Intensified Treatment in Heart Failure (GUIDE-IT) study. The data now include quality of life data.
New Study: CARE-AIMS (data)
Posted on August 12, 2020
A new study, Childhood Asthma Research and Education (CARE) Network Trial - Acute Intervention Management Strategies (AIMS), has been posted to BioLINCC. Data from this study are available for requests.
New Study: ATTRACT (data)
Posted on July 28, 2020
A new study, Acute Venous Thrombosis: Thrombus Removal With Adjunctive Catheter-Directed Thrombolysis (ATTRACT), has been posted to BioLINCC. Data from this study are available for requests.
Funding Opportunities Added
Posted on August 30, 2019
New information regarding secondary data and/or biospecimen analysis funding opportunities from NHLBI, NIDDK, and FDA has been added to the funding opportunities page. These NIH Exploratory (R21) grant funding opportunities may be applicable to research using BioLINCC resources. Additionally included is an NHLBI released Notice of Special Interest (NOSI) on Data Science R01 applications. Please see the funding opportunities page, which includes links to the NIH grant announcements, for more information.