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Biologic Specimen and Data Repository Information Coordinating Center
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Alpha1-Antitrypsin Deficiency Registry (AADR)
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Index of Forms
Adverse reaction (PDF - 229.3 KB)
Authorization (PDF - 67.3 KB)
CC instruct for the aug therapy record (PDF - 159.0 KB)
Cause of death review (PDF - 185.6 KB)
Data change (PDF - 129.1 KB)
Data query (PDF - 93.5 KB)
Drop-out and death notification (PDF - 144.4 KB)
Family relationship (PDF - 53.7 KB)
Final death notification (PDF - 168.8 KB)
Follow-up visit form part A (PDF - 688.2 KB)
Follow-up visit form part B (PDF - 233.6 KB)
Initial visit part A (PDF - 861.7 KB)
Initial visit part B (PDF - 215.1 KB)
Lab results - normal ranges (PDF - 84.5 KB)
Modified dyspnia index (PDF - 570.5 KB)
Organ transplantation (PDF - 87.1 KB)
PFT retrospective data (PDF - 115.0 KB)
Participant survey (PDF - 95.3 KB)
Patient information (PDF - 85.6 KB)
Pulmonary function survey (PDF - 127.9 KB)
Pulmonary function test equipment (PDF - 156.3 KB)
Pulmonary function (PDF - 347.9 KB)
Quality control of PFT data (PDF - 168.6 KB)
Registry screening (PDF - 371.4 KB)
Release of medical information (PDF - 46.6 KB)
Telephone contact follow-up (PDF - 97.4 KB)